Sunday, September 24, 2023


I began struggling with arthritis in primarily my massive joints particularly my knees 6 years in the past. The signs diversified and I bear in mind saying that each joint was affected besides my elbows to 1 physician. I used to be informed it could be hormonal and to take the standard dietary supplements cod liver oil or glucosamine ( I will surely suggest shopping for shares within the firms producing these dietary supplements) They’d no noticeable have an effect on.

All my signs deteriorated considerably over a number of weeks, 4 years in the past. Hips shoulders and knees being the worst and I began with muscle weak spot in higher arms and higher legs. I had problem standing and strolling throughout a room. I used to be unable to stroll upstairs and my husband was planning to transform to a downstairs bed room. I had seen 5 medical doctors and three Rheumatologists and placed on steroids for Poly Myalgia Rheumatica prognosis. I had been identified with Fibromyalgia and ME/CFS.

I’ve X rays and scans displaying indicators of osteoarthritis and Rheumatoid arthritis. I’ve been retired early from the Civil Service having misplaced my job to not point out my incomes potential.

My sickness appeared to progress via my physique not affecting the identical joints left to proper on the similar time. I had bursitis in left hip, proper hip, left elbow. I had synovial thickening in each wrists. At the moment I couldn’t carry and maintain {a magazine} so lifting a kettle I might solely do if a 3rd full and with two fingers. Every joint in my fingers fingers toes and toes have been affected. I had swallowing difficulties and plenty of different signs. None of this describes the infinite and terrible ache every time I moved or the tiredness however lack of ability to get high quality sleep.

Two years in the past my GP gave me Amoxicilin for a sinus/throat/chest an infection. All my arthritis signs improved. The course ended the signs deteriorated I began a second course the signs improved. The development was extra important than after I had began taking steroids. This led my GP to suspect Lyme Illness. I laughed as a result of we don’t journey overseas however she stated they’d had different circumstances within the surgical procedure within the early levels of tick chew and Erythma Migrans rash. She stated, however you haven’t had a chew. I stated oh sure I’ve I had two on my ankles with rashes, March 05 this was confirmed on her laptop on the time I had seen a locum physician. My worst signs have been waking up feeling inflexible and having to painfully flex each joint in my physique earlier than struggling to rise up. The one different time I had skilled this was in Might 2003 throughout a flu like sickness like no different I had ever skilled. At the moment I had a chew and related rash on my proper foot which lasted like the opposite rashes about 4 weeks. I had additionally consulted the surgical procedure and it was dismissed as a virus. I walked our canine day by day within the woods adjoining to our home the place the deer roam, prime tick space.

Thus began my very prolonged search about Lyme Illness main me via to a health care provider who specialises on this sickness. He confirmed my GP’s suspicions. I by no means had a optimistic blood check however then they’re antigen exams and there may be a lot analysis that exhibits they’re unreliable. In my case the 12 months of steroids and plenty of weeks antibiotics might have affected the outcomes. So with a medical prognosis and following ILADS Worldwide Lyme and Related Illness Society pointers I continued on antibiotics for 2 years. Each my medical doctors continued to deal with me regardless of the Well being Safety Company advising in opposition to long run antibiotics. I’m now almost 100% recovered I’ve no ache or muscle weak spot. I can stroll upstairs one thing I couldn’t do for 3 and a half years. I can backyard do home work and reside a traditional life. I nonetheless have to tempo myself and with only some months to 60 is not going to be seeking to return to work.

Life is such a pleasure.

Sadly there may be a lot controversy about Lyme Illness and medical doctors in UK are taught that it’s so uncommon. Properly the place I reside in Guildford I’ve been in touch with a dozen different individuals with it so maybe not so uncommon as HPA would love us to consider. I’m in contact with almost 2000 different sufferers via a chat line Eurolyme most had been misdiagnosed with a number of different diseases.

Have a look at UK charity if you wish to learn extra about this sickness. There are a lot of MP’s taking an curiosity within the issues surrounding prognosis and therapy see above charity hyperlinks right into a latest assembly on the Home of Commons.

Thank goodness there are some considering medical doctors round who’ve courageously handled me in opposition to opposition and I’ve made such a miraculous restoration albeit slightly a prolonged one.

In the future there can be many extra people who find themselves helped with their continual diseases when IDSA begins being attentive to what our brave LLMD’s are doing following ILADS Tips.

ME/CFS, Fibromyalgia, Poly Myalgia Rheumatica, Arthritis, Bell’s Palsy, MS,MN, ALS, Parkinson’s, Alzheimer’s, Coronary heart Block, Stroke, Psychiatric, gastric issues the listing is infinite. Not all affected by Lyme Borrelia however what number of are even correctly assessed for it.




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